Rare is many on February 29

Rare Voices Australia is excited to announce that the Minister for Health, the Hon Greg Hunt MP, will be launching the National Strategic Action Plan for Rare Diseases at our upcoming Parliamentary Event on Wednesday, 26 February. 

This year, Rare Disease Day will be celebrated on the actual date chosen for Rare Disease Day – 29 February, the rarest day of the year. In years when there is no 29 February, Rare Disease Day is celebrated on the last day of February. This year’s focus is on reframing what it means to be rare. 

Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point in their life. This equates to over 300 million people living with a rare disease worldwide.

Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.

The campaign materials for 2020, including new social media elements, are now available to download. If you or your your organisation is hosting an event, don’t forget to submit the details to the official Rare Disease Day website. 

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