News & Trends - Pharmaceuticals
‘We’ve heard the recommendations. Now is the time for decisive action,’ declares RCA CEO

Rare Cancers Australia (RCA) will launch the Rare Cancer Moonshot in Parliament House today, framing it as a “final pitch for action from a community feeling left behind. A community which includes the co-founder of RCA, a mother whose daughter is battling rare brain cancer, and countless others living with rare anal and ovarian cancers.”
Every day Rare Cancers Australia hears from patients navigating a healthcare system that can seem as uncompassionate as it is complex. There is an immense financial burden of services and treatments, the frustration of not being able to access vital information, and the heartache of feeling powerless to make informed decisions about their care.
“The cost of rare and less common cancers extends far beyond the physical toll – it profoundly impacts the emotional and financial well-being of patients, their loved ones, the community and our economy,” stated Christine Cockburn, CEO of Rare Cancers Australia.

These challenges resonate with clinicians, supporters, and advocates across the political spectrum. Rare cancers do not discriminate. The issues have been acknowledged in Senate and House of Representatives inquiries and through the ongoing review of Health Technology Assessment (HTA) processes. There is a wide variety work from many NGOs and think tanks, and we have broad recognition that change is needed, yet progress remains frustratingly slow.
“Time is of the essence. Patients have waited long enough,” Cockburn emphasised.
“We’ve had the conversations. We’ve heard the recommendations. Now is the time for decisive action.
In reimagining healthcare across the entire patient journey, Health Industry HubTM is the only one-stop-hub uniting the diversity of the Pharma, MedTech, Diagnostics & Biotech sectors to inspire meaningful change.
The Health Industry HubTM content is copyright protected. Access is available under individual user licenses. Please click here to subscribe and visit T&Cs here.
News & Trends - Biotechnology

CSL reshapes R&D while bracing for U.S. tariffs
Australia’s largest biotech company CSL is streamlining its R&D operations to enhance efficiency amidst a rapidly evolving global landscape. The […]
MoreNews & Trends - MedTech & Diagnostics

Australia joins Medtronic trial in fight against resistant hypertension
Medtronic has launched an international clinical trial across Australia, the United States, and Europe to evaluate the feasibility of multi-organ […]
MoreNews & Trends - MedTech & Diagnostics

Medibank launches pharmacogenetic testing while government stalls on insurance discrimination ban
Medibank has become the first Australian health insurer to pay towards pharmacogenetic testing (PGx) for eligible customers on Extras cover. […]
MoreNews & Trends - Pharmaceuticals

Global pledge shifts visibility and action for patients with advanced breast cancer
Three breast cancer organisations have united internationally to demand that people living with metastatic breast cancer (MBC) are no longer […]
More